Ethical Issues of Human Genetic Databases

A Challenge to Classical Health Research Ethics?

Nonfiction, Reference & Language, Law, Jurisprudence
Cover of the book Ethical Issues of Human Genetic Databases by Bernice Elger, Taylor and Francis
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Author: Bernice Elger ISBN: 9781317141457
Publisher: Taylor and Francis Publication: May 13, 2016
Imprint: Routledge Language: English
Author: Bernice Elger
ISBN: 9781317141457
Publisher: Taylor and Francis
Publication: May 13, 2016
Imprint: Routledge
Language: English

Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.

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Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.

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