Learning to Live with Huntington's Disease

One Family's Story

Nonfiction, Health & Well Being, Health, Ailments & Diseases, Self Help
Cover of the book Learning to Live with Huntington's Disease by Danny Dourado, Phil Dourado, Wendy Dant, Bromley Sulaiman, Chantel Sulaiman, Sandy Sulaiman, Jessica Kingsley Publishers
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Author: Danny Dourado, Phil Dourado, Wendy Dant, Bromley Sulaiman, Chantel Sulaiman, Sandy Sulaiman ISBN: 9781846426308
Publisher: Jessica Kingsley Publishers Publication: April 15, 2007
Imprint: Jessica Kingsley Publishers Language: English
Author: Danny Dourado, Phil Dourado, Wendy Dant, Bromley Sulaiman, Chantel Sulaiman, Sandy Sulaiman
ISBN: 9781846426308
Publisher: Jessica Kingsley Publishers
Publication: April 15, 2007
Imprint: Jessica Kingsley Publishers
Language: English

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD.
This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not.
Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD.
This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not.
Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

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