Principles and Practice in Biobank Governance

Nonfiction, Social & Cultural Studies, Social Science, Anthropology
Cover of the book Principles and Practice in Biobank Governance by Mark Stranger, Taylor and Francis
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Author: Mark Stranger ISBN: 9781317075875
Publisher: Taylor and Francis Publication: April 15, 2016
Imprint: Routledge Language: English
Author: Mark Stranger
ISBN: 9781317075875
Publisher: Taylor and Francis
Publication: April 15, 2016
Imprint: Routledge
Language: English

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

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