Raising a Heart Child: A Parent's Guide to Congenital Heart Defects

“There’s something wrong with your baby’s heart.” Until the day I die, I will never forget those words. For those words marked the beginning of our battle against congenital heart defects (CHD). They came in the middle of my pregnancy as I carried the child I’d wanted all my life. I chose to fight for my child’s life, and this story was born out of that choice. Essentially a field guide for parents and grandparents of children facing CHD, this book chronicles all the details of my son’s journey. Every test, every surgery, every victory that led him to today. Today he is a beautiful, intelligent, normal child. There are also facts on CHD to help you navigate the often murky waters of the medical community. This is the book that I wanted when we discovered my son’s CHD. Through it, may you find the hope and guidance you need to conquer each step of your own CHD journey.